(a) The Department shall do the following:
         (1)(A) Develop application criteria and standards of
    
eligibility for groups or organizations who apply for funds under the program.
        (B) Make available grants to groups and organizations
    
who meet the eligibility standards set by the Department. However:
            (i) the highest priority for grants shall be
        
accorded to established sickle cell disease community-based organizations throughout Illinois; and
            (ii) priority shall also be given to ensuring the
        
establishment of sickle cell disease centers in underserved areas that have a higher population of sickle cell disease patients.
        (2) Determine the maximum amount available for each
    
grant provided under subparagraph (B) of paragraph (1).
        (3) Determine policies for the expiration and renewal
    
of grants provided under subparagraph (B) of paragraph (1).
        (4) Require that all grant funds be used for the
    
purpose of prevention, care, and treatment of sickle cell disease or for educational programs concerning the disease. Grant funds shall be used for one or more of the following purposes:
            (A) Assisting in the development and expansion of
        
care for the treatment of individuals with sickle cell disease, particularly for adults, including the following types of care:
                (i) Self-administered care.

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Terms Used In Illinois Compiled Statutes 410 ILCS 460/131-15

  • Contract: A legal written agreement that becomes binding when signed.
  • individual: shall include every infant member of the species homo sapiens who is born alive at any stage of development. See Illinois Compiled Statutes 5 ILCS 70/1.36

                 (ii) Preventive care.
                 (iii) Home care.
                 (iv) Other evidence-based medical procedures
            
and techniques designed to provide maximum control over sickling episodes typical of occurring to an individual with the disease.
            (B) Increasing access to health care for
        
individuals with sickle cell disease.
            (C) Establishing additional sickle cell disease
        
infusion centers.
            (D) Increasing access to mental health resources
        
and pain management therapies for individuals with sickle cell disease.
            (E) Providing counseling to any individual, at no
        
cost, concerning sickle cell disease and sickle cell trait, and the characteristics, symptoms, and treatment of the disease.
                (i) The counseling described in this
            
subparagraph (E) may consist of any of the following:
                    (I) Genetic counseling for an individual
                
who tests positive for the sickle cell trait.
                    (II) Psychosocial counseling for an
                
individual who tests positive for sickle cell disease, including any of the following:
                        (aa) Social service counseling.
                         (bb) Psychological counseling.
                         (cc) Psychiatric counseling.
         (5) Develop a sickle cell disease educational
    
outreach program that includes the dissemination of educational materials to the following concerning sickle cell disease and sickle cell trait:
            (A) Medical residents.
             (B) Immigrants.
             (C) Schools and universities.
         (6) Adopt any rules necessary to implement the
    
provisions of this Act.
    (b) The Department may contract with an entity to implement the sickle cell disease educational outreach program described in paragraph (5) of subsection (a).