A direct-to-consumer genetic testing company may not disclose a consumer‘s genetic data without the consumer’s written consent to:

(1) an entity that offers health insurance, life insurance, or long-term care insurance; or

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Terms Used In Utah Code 13-60-105

  • company: means an entity that:
         (4)(a) offers consumer genetic testing products or services directly to consumers; or
         (4)(b) collects, uses, or analyzes genetic data that a consumer provides to the entity. See Utah Code 13-60-102
  • Consumer: means an individual who is a resident of the state. See Utah Code 13-60-102
  • Genetic data: includes :
              (7)(b)(i) raw sequence data that result from sequencing all or a portion of a consumer's extracted DNA;
              (7)(b)(ii) genotypic and phenotypic information obtained from analyzing a consumer's raw sequence data; and
              (7)(b)(iii) self-reported health information regarding a consumer's health conditions that the consumer provides to a company that the company:
                   (7)(b)(iii)(A) uses for scientific research or product development; and
                   (7)(b)(iii)(B) analyzes in connection with the consumer's raw sequence data. See Utah Code 13-60-102
  • Genetic testing: means :
         (8)(a) a laboratory test of a consumer's complete DNA, regions of DNA, chromosomes, genes, or gene products to determine the presence of genetic characteristics of the consumer; or
         (8)(b) an interpretation of a consumer's genetic data. See Utah Code 13-60-102
(2) an employer of the consumer.