Rhode Island General Laws 40.1-26-3. Participants’ rights
In addition to any other rights provided by state or federal laws, a participant as defined in this chapter shall be entitled to the following rights:
(1) To be treated with dignity, respect for privacy, and have the right to a safe and supportive environment;
(2) To be free from verbal and physical abuse;
(3)(i) To engage in any activity, including employment, appropriate to his or her age, and interests in the most integrated community setting;
(ii) No participant shall be required to perform labor that involves the essential operation and maintenance of the agency or the regular supervision or care of other participants. Participants may however, be requested to perform labor involving normal housekeeping and home-maintenance functions if these responsibilities are documented in the participant’s individualized plan;
(4) To participate in the development of his or her individualized plan and to provide informed consent to its implementation or to have an advocate provide informed consent if the participant is not competent to do so;
(5) To have access to his or her individualized plan and other medical, social, financial, vocational, psychiatric, or other information included in the file maintained by the agency;
(6) To give written informed consent prior to the imposition of any plan designed to modify behavior, including those that utilize aversive techniques or impair the participant’s liberty, or to have an advocate provide written informed consent if the participant is not competent to do so. Provided, however, that if the participant is competent to provide consent but cannot provide written consent, the agency shall accept an alternate form of consent and document in the participant’s record how such consent was obtained;
(7) To register a complaint regarding an alleged violation of rights through the grievance procedure delineated in §?40.1-26-5;
(8) To be free from unnecessary restraint. Restraints shall not be employed as punishment, for the convenience of the staff, or as a substitute for an individualized plan. Restraints shall impose the least possible restrictions consistent with their purpose and shall be removed when the emergency ends. Restraints shall not cause physical injury to the participant and shall be designed to allow the greatest possible comfort. Restraints shall be subject to the following conditions:
(i) Physical restraint shall be employed only in emergencies to protect the participant or others from imminent injury or when prescribed by a physician, when necessary, during the conduct of a specific medical or surgical procedure or if necessary for participant protection during the time that a medical condition exists;
(ii) Chemical restraint shall only be used when prescribed by a physician in extreme emergencies in which physical restraint is not possible and the harmful effects of the emergency clearly outweigh the potential harmful effects of the chemical restraints;
(iii) No participant shall be placed in seclusion;
(iv) The agency shall have a written policy that defines the use of restraints, the staff members who may authorize their use, and a mechanism for monitoring and controlling their use;
(v) All orders for restraint, as well as the required frequency of staff observation of the participant, shall be written;
(9) To have, at any time, access to telephone communication;
(10) To receive visitors of a participant’s choosing at any time;
(11) To keep and be allowed to spend one’s own money;
(12) To be provided advance written notice explaining the reason(s) why the participant is no longer eligible for service from the agency;
(13) To religious freedom and practice;
(14) To communicate by sealed mail or otherwise with persons of one’s choosing;
(15) To select and wear one’s own clothing and to keep and use one’s own personal possessions;
(16) To have prompt access to current newspapers, magazines, and radio and television programming;
(17) To have opportunities for physical exercise and outdoor recreation;
(18)(i) To provide informed consent prior to the imposition of any invasive medical treatment, including any surgical procedure, or to have a legal guardian, or in the absence of a legal guardian, a relative as defined in this chapter, provide informed consent if the participant is not competent to do so. Information upon which a participant shall make necessary treatment and/or surgery decisions shall be presented to the participant in a manner consistent with his or her learning style and shall include, but not be limited to:
(A) The nature and consequences of the procedure(s);
(B) The risks, benefits, and purpose of the procedure(s); and
(C) Alternate procedures available;
(ii) The informed consent of a participant, or his or her legal guardian, or, in the absence of a legal guardian, a relative as defined in this chapter, may be withdrawn at any time, with or without cause, prior to treatment. The absence of informed consent notwithstanding, a licensed and qualified physician may render emergency medical care or treatment to any participant who has been injured or who is suffering from an acute illness, disease, or condition if, within a reasonable degree of medical certainty, delay in initiation of emergency medical care or treatment would endanger the health of the participant;
(19) Each participant shall have a central record. The record shall include data pertaining to admissions and other information as may be required under regulations by the department;
(20) Admissions — As part of the procedure for the admission of a participant to an agency, each participant or applicant, or advocate if the participant or applicant is not competent, shall be fully informed, orally and in writing, of all rules, regulations, and policies governing participant conduct and responsibilities, including grounds for dismissal, procedures for discharge, and all anticipated financial charges, including all costs not covered under federal and/or state programs, by other third-party payors or by the agency’s basic per-diem rate. The written notice shall include information regarding the participant’s or applicant’s right to appeal the admission or dismissal decisions of the agency;
(21) Upon termination of services to or death of a participant, a final accounting shall be made of all personal effects and/or money belonging to the participant held by the agency. All personal effects and/or money, including interest, shall be promptly released to the participant, or his or her heirs;
(22) Nothing in this chapter shall preclude intervention in the form of appropriate and reasonable restraint should it be necessary to protect individuals from physical injury to themselves or others.
History of Section.
P.L. 1990, ch. 414, § 1; P.L. 1991, ch. 248, § 1; P.L. 1994, ch. 83, § 2; P.L. 1997, ch. 136, § 2; P.L. 2019, ch. 88, art. 13, § 11.
Terms Used In Rhode Island General Laws 40.1-26-3
- Advocate: means : (i) A legal guardian; or (ii) An individual acting on behalf of a person with a developmental disability in a manner clearly consistent with the interests of the person with a developmental disability and includes a family member, friend, or professional advocate. See Rhode Island General Laws 40.1-26-2
- Agency: means any person or organization that provides day-program services, residential services, support services, or advocacy services for persons with developmental disabilities, and that is licensed by the department of behavioral healthcare, developmental disabilities and hospitals pursuant to Rhode Island General Laws 40.1-26-2
- Appeal: A request made after a trial, asking another court (usually the court of appeals) to decide whether the trial was conducted properly. To make such a request is "to appeal" or "to take an appeal." One who appeals is called the appellant.
- Applicant: means any person with a developmental disability who has applied for services from the division of developmental disabilities and/or any agency licensed by the department of behavioral healthcare, developmental disabilities and hospitals pursuant to Rhode Island General Laws 40.1-26-2
- Competent: means the ability to understand the likely risks and benefits of a procedure or plan when the risks and benefits are presented to the participant in a manner most likely to be understood by the participant in light of his or her cognitive abilities and learning style. See Rhode Island General Laws 40.1-26-2
- Complaint: A written statement by the plaintiff stating the wrongs allegedly committed by the defendant.
- Department: means the department of behavioral healthcare, developmental disabilities and hospitals. See Rhode Island General Laws 40.1-26-2
- Dismissal: The dropping of a case by the judge without further consideration or hearing. Source:
- Guardian: A person legally empowered and charged with the duty of taking care of and managing the property of another person who because of age, intellect, or health, is incapable of managing his (her) own affairs.
- in writing: include printing, engraving, lithographing, and photo-lithographing, and all other representations of words in letters of the usual form. See Rhode Island General Laws 43-3-16
- Individualized plan: means the personalized document that describes an individualized profile of the participant highlighting his or her capabilities, preferences, and interests. See Rhode Island General Laws 40.1-26-2
- Participant: means any person eighteen (18) years or older, with a developmental disability who receives services from the division of developmental disabilities and/or an agency licensed by the department of behavioral healthcare, developmental disabilities and hospitals. See Rhode Island General Laws 40.1-26-2
- Relative: means a member of the participant's or applicant's family who has been actively involved in the participant's or applicant's life; has an ongoing relationship with the participant or applicant; and is supportive in a manner clearly consistent with the best interests of the participant or applicant. See Rhode Island General Laws 40.1-26-2
- Seclusion: means placing a participant alone in a locked room without supervision. See Rhode Island General Laws 40.1-26-2